April 10, 2011

Day 31. One Month on SCD

I've reached the one month mark!

I started taking a couple minutes each day to jot down things like dates, foods, symptoms etc. after my doc asked me to some years ago; I have a Superhuman ability to forget UC related stuff by the next day so notes are helpful.

The following touches on symptoms, so if not interested in TMI, please stop reading!

Timeline:

Jan 1: Could feel things slipping.
Jan 12: Came back from India; slept for a marathon 22 hours (apparently it's possible!) after 3 months of super fun but hectic work 
Jan 13: Literally woke up with a flare; within two days, the flare became a  on the UC scale; could not walk due to constant pain or stand for more than a minute; fetal position was pretty much status quo (a first, though last year's Lialda triggered flare was similar: Jan 12, 2010 - started Lialda; Jan 13, 2010 - sharp stomach pain)
Feb 19: Able to walk downstairs for a few minutes 
Feb 21: Tried to go out; didn't last five minutes - rushed back home, severe pain 
March 5: Successfully went to Target for an hour 
March 7: Able to sit with friends (yay!) for about an hour - on and off pain 
March 10: Started the intro diet 
March 11: Pain gone! 
March 14: Pain back 
March 15: Went off intro 
March 16: Pain mostly gone, able to go out pretty easily; low energy; great gut 
April 10: No pain, good energy 

Drugs: Sulfasalazine – 4 3x/day (always take a folic acid supplement if taking the sulfa)

I was not running back and forth to the bathroom as frequently as in the past (worst: ~20x/day - it SUCKED).  Symptoms have changed over the years.  In high school, it was midnite bathroom runs (12am..1am..2am..3am..4am...5am..), urgency.  In college, lots of bleeding:( After college, did SCD, got to remission. After I stopped SCD a couple yrs ago, the worst was pain.

Through the flare, my emotional status was A+okay, all things considered. Before the diet ~ 3.5 years ago, I had nothing to rely on... and so no hope. Also being at home is so much less stressful than being on my own and sharing a bathroom. This flare had subsided quite a bit by the time I started the diet on March 10, so no drastic changes since then, but I do have more energy and pain is not a symptom any more - a huge relief!  I felt best on the intro. Will be going to acupuncture more frequently, twice a week, as that will speed up progress as well.